Good news to report, Lilah's chest x-ray and echo were much improved this morning. Her lungs look clearer and her heart is not as large. The echo showed that her heart is stronger and pumping "more efficiently" than when this began. The Cardiologist was very pleased and excited to deliver the good news. They are planning on moving Lilah out of the ICU today to a regular room and are working on weaning her off the oxygen.
The plan, at this point, is still to go home Friday after the EMG. Lilah will wear a heart monitor at home that will record her heart rhythms. She has not had any irregular rhythms thus far, and they are thankful for that. Since Lilah has responded to the treatment so well, the cardiologist's plan is to treat her condition at home with medicines for now. She was able to take all her medicines by mouth last night (as opposed to IV).
They are weary today. Paul said this good news has brought with it somewhat of a sense of relief... and for the first time, they feel like they can "let their guard down" a bit. He went on to say, that as they are able to begin to relax...they are exhausted. Gina said yesterday that she couldn't decide if time was moving fast or slow. She has not left the hospital yet, but was going to try to see Garrett today and was excited about that. Paul continues to speak of how the Lord had prepared them for this and he wanted to share something they had read in the weeks before Lilah's diagnosis. It is August 5th's morning devotional from Spurgeon's Morning and Evening. They are both constantly saying "thank you" for the love, concern, prayers, scripture, etc...they feel the support. Will continue to update.
Here are a few picts Paul sent last night...
14 comments:
Hallelujah the Lord is good...His mercies are new every morning.
I'm am so glad to see some good news! Just wanted to let you know that you are in my prayer(as well as all the teachers and families at St. Mark). I can't wait to love on Garrett some more on Thursday. Kristen and I will do everything we can to help Garrett get through all this.
Maggie LeSerra
Praise God from whom all blessings flow! What great news about Lilah. A verse that has been a favorite of mine during the last four and a half years is -
The Soveriegn Lord is my strength! He makes me as surefooted as a deer, able to tread upon the heights. Hab. 3:19
As you walk on the rocky cliffs of this hard time, may He be your strength as you cling to what you know to be true of Him - he is good, He is soveriegn and His grace is abundantly sufficient for each circumstance.
I continue to pray for your sweet family - Gayle Myatt
I am sooo glad to hear the good news! I know God has been holding your hand through this and I want to say that you have been an inspiration to me and confirmed that even in the most desperate times God really doesn't give us anything we can't handle (if you believe in Him). He is using you, Lilah, and Paul to spread His truth. I'm sure you would gladly give this over if you could but no one could be a better mother to this child than you, Gina. I love you guys!
Heather Towne (and by the way I would only blog for you sista)
we thank the Lord and celebrate this good news!
will continue to pray.
"Come to me, all who labor and are heavy laden, and I will give you rest. Take my yoke upon you, and learn form me, for I am gentle and lowly in heart, and you will find rest for your souls."
we love you,
the harrimans
forgot the reference (above)
Matthew 11:28-29
Praise God from whom all blessings flow! Praising Him for this good news. We will be praying that God will continue to deliver encouraging reports from the doctors, especially with the testing on Friday.
Paul, Gina & Lilah -- all three of you have been such an inspiration through all of this. I praise God for your family. Love, Jill & Steve
wonderful to read good news! We are praying for the Burch family.
Lots of love!!!
"When I am afraid, I will trust in you." Psalm 56:3
I am so thankful for the good report today. What an encouragement you continue to be to me. Thank you for sharing Lilah's story with us, it is a privilege to walk alongside you through this. Loving and missing you-
Elizabeth
God is truly working His miraculous power in sweet little Lilah. I pray that He chooses to continue this and that you receive more and more good news. You must be so physically, spiritually, and emotionally exhausted, so I will also be praying that you may receive good rest in the near future. We love your entire family and thank God for His mercies!
April Grimsley
I was so happy to read your good news about Lilah. I have been praying for you and your sweet girl and will continue to pray for healing and peace.
Molly Tilson
God Answers Knee Mail!! Thank You Lord! Such good news! I'll continue to pray!
Jason Ledbetter
We are rejoicing with you as we continue to pray for endurance and wisdom for you and your family, and and God's shield of protection for Baby Lilah.
Eric & Ruthie
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