The other new development is that Lilah began having seizures in the night. Lilah had a few events yesterday that in retrospect may have been small seizures, but she had two full blown seizures last night. The first around 4am and the second an hour or so later. She has already had an ultrasound of her brain to evaluate due to the seizures and her brain is normal. She has also had an EEG to evaluate, they do not have the results of this yet, but she did not have any seizure activity during the test. They have also done bloodwork to try to find the cause of the seizures and it was all normal; furthermore, they do not feel that it is the cause of any of her medications.
After these 2 big seizures, it was hard for Gina to sleep...she just wants to sit and "monitor" her. Will post more as things develop.
**Update - The Neurologist just saw Lilah and said that he is not "convinced" that what she had was a seizure. It could have potentially been some type of "convulsion". Since the EEG did not show any seizure activity, he feels the need to "prove" that it was a seizure. So, Lilah will have a CAT scan to evaluate further. They do not know for sure, but can't imagine they will leave the hospital today. They say they feel completely covered in prayer and continue to say thank you.