"When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the LORD, your God, the Holy One of Israel, your Savior..." Isaiah 43:2-3
There is not much change to report today. Lilah did have a Pulmonologist see her this morning. He said things were ok and felt that the current Dr's were managing everything fine. Though there is not any "bad news" per se, Lilah does not seem as well as she did yesterday. Her color is not as good, her heart rate has been increased intermittently and she has been sweaty at times. Paul says they can look at her eyes and just tell she is "sick" today. She is still "stable" and though she did not have any tests today (x-ray or echo), her Dr's do not anticipate that any of them would be much different than yesterday. This is just a "bad day." In light of this, they may decide to keep her at the hospital longer. She has been off of the oxygen for a while and is doing ok without it.
Paul kept saying that they love Lilah so much and that they feel so blessed to have her. Paul said he knows that Lilah will have good days and bad days...they are just coming to an awareness of what she has...and they are sad. He said that he and Gina have had different emotions at different times...that one will be up when the other is down and vice versa. They have been glad to carry one another through their "down" days. Gina did get to see Garrett yesterday and was thankful. They remain encouraged by scripture and say that they are constantly reading the words everyone is sending and reading them to Lilah as well. Paul kept saying how kind everyone has been from his work... that they have really given him the freedom to just take care of Lilah. He said this has really taken a burden off of him. Finally, Lilah's EMG is tomorrow from 8-9am. They will be able to be with her and are glad. They again ask for your prayers for that test specifically, as well as the results. Will update as we hear news.