Thursday, September 11, 2008

Good days and Bad days...

"When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you.  When you walk through the fire, you will not be burned; the flames will not set you ablaze.  For I am the LORD, your God, the Holy One of Israel, your Savior..."  Isaiah 43:2-3

There is not much change to report today.  Lilah did have a Pulmonologist see her this morning.  He said things were ok and felt that the current Dr's were managing everything fine.  Though there is not any "bad news" per se,  Lilah does not seem as well as she did yesterday.  Her color is not as good, her heart rate has been increased intermittently and she has been sweaty at times.  Paul says they can look at her eyes and just tell she is "sick" today.  She is still "stable" and though she did not have any tests today (x-ray or echo), her Dr's do not anticipate that any of them would be much different than yesterday.  This is just a "bad day."  In light of this, they may decide to keep her at the hospital longer.  She has been off of the oxygen for a while and is doing ok without it.  

Paul kept saying that they love Lilah so much and that they feel so blessed to have her.  Paul said he knows that Lilah will have good days and bad days...they are just coming to an awareness of what she has...and they are sad.  He said that he and Gina have had different emotions at different times...that one will be up when the other is down and vice versa.  They have been glad to carry one another through their "down" days.  Gina did get to see Garrett yesterday and was thankful.  They remain encouraged by scripture and say that they are constantly reading the words everyone is sending and reading them to Lilah as well.  Paul kept saying how kind everyone has been from his work...  that they have really given him the freedom to just take care of Lilah.  He said this has really taken a burden off of him.  Finally, Lilah's EMG is tomorrow from 8-9am.  They will be able to be with her and are glad.  They again ask for your prayers for that test specifically, as well as the results.   Will update as we hear news.

14 comments:

Maggie said...

You will all be in my thoughts tomorrow as Lila undergoes her tests. All my love and prayers to you all,
Maggie

Johnson Party of seven! said...

Hey Paul and Gina-
We will continue to pray for that sweet baby of yours. I think of her so often throughout the day and always stop to say a prayer to The Great Physician for her complete healing.
Paul- It was so good to see you in passing yesterday. I just simply want you both to know that there are a whole bunch of people out here who are coming together because of one special little girl, getting on our knees, asking for God's mercy to be shown to her. I KNOW that prayer works. I will be praying for Lilah.

Jessica said...

I hope you feel the power of prayer working in your life right now - I know there are so many people around the world praying for little Lilah and her family. I wish I could be there to hug you all. Go Lilah, Fight! Much love!

Ashley said...

And I have put my words in your mouth and hidden you safe within my hand. I planted the stars in place and molded the earth. I am the one who says to Israel, "you are mine". Isaiah 51:16

I am so grateful to see your faith evidenced through these tests, may you feel God caring for you now, as you care for your precious Lilah.

Ashley B.

Chris Myatt said...

Paul & Gina-
We are continuing to pray for you, Burches. "Be still, and know that I am God." Psalm 46:10. I am overwhelmed by the sheer number of people that are praying for Lilah, from Israel to here to who knows where. Miss you, dear friends.

Elizabeth Myatt said...

For my dear friends tonight...
"My comfort in my suffering is this: Your promise preserves my life." Psalm 119:50

No other words for you tonight, love you.

Anonymous said...

woke up this morning with you and Lilah on my mind...praying for you guys this morning as they do the test...praying for your weary bodies and souls...

"O cling to thy Redeemer,
Thy Savior, Brother, Friend.
Believe and Trust His promise,
To keep you till the end.
O watch and wait with patience
And question all you will.
His arms of love and mercy
Are round about thee still."
-Fanny Crosby, "O Heart Bereaved and Lonely"

love you so much,
emily harriman

The Leonards said...

also woke up this morning with lilah on my mind. i am praying for all of you as the test is done in just a little while. praying for healing, strength, comfort, and peace that only our Savior can give.
"Hear, O Lord, my voice when I call; Be merciful to me and answer me. My heart says of You, "Seek his face!" Your face, Lord, I will seek." Psalm 27:7-8
we love you, laura

notes from em said...

still on our knee's

Spanish said...

Gina, Paul, Garrett, and Lilah,
You all are in my thoughts and prayers throughout everyday. My mom is praying as well and we are grateful to be able to recieve updates via your blog...Praying that the Lord brings little Lilah comfort,strength and healing. Keep the faith!
Love,
Julia, Andrew, Will, Drew, and Lily

Amy said...

That verse in Isaiah 43 is one of my favorites. Hold onto that! God didn't promise we wouldn't have "bad days," but He did promise to carry us through them! We continue to pray... hang in there!
Sending our love from Texas,
Amy

The Henleys said...

You can now add our community group in Atlanta to the ranks of concerned friends praying for Lilah and the rest of your family. Simon and I are so inspired by the way you two are carrying each other through this. Praying for you all and missing you lots.

Steve and Jill temple said...

I wait quietly before God,
for my hope is in Him.
He alone is my rock & my salvation,
my fortress where I will not be shaken.
My salvation & my honor come from God alone.
He is my refuge, a rock where no enemy can reach me.
Ps. 62:5-7
I pray that God gives you refuge & that you feel like a safe ship, anchored by the Spirit, in His harbor during this storm.
Grace,
Steve & Jill Temple

Anonymous said...

Just heard the news and we will be praying out here in Texas.

love,

paige and scott cunningham