"I wait for the LORD, my soul waits, and in his word I put my hope. My soul waits for the Lord more than watchmen wait for the morning, more than watchmen wait for the morning. O Israel, put your hope in the LORD, for with the LORD is unfailing love and with him is full redemption."
Not much change to report today. Lilah continues to improve and respond to the medicines. The ICU Dr. that checked them in saw them this morning and said he was very surprised at how well she is doing...really better than he ever imagined. He truly seemed shocked and said she has done the very best he could have hoped for. They were all quite thankful to her this. Lilah is nursing great now, another huge praise. There are no tests scheduled for today, chest x-ray and echo will be done tomorrow and EMG (electromyography) on Friday. They are asking that we all pray specifically that the EMG is "negative" and that this is not any sort of dystrophy (degeneration of muscles) or myopathy (muscle disease where the muscle fibers do not function resulting in muscular weakness). Her condition will be more complicated if this is the case, rather than just isolated cardiac defects. If the EMG is positive, they will dig deeper to find out more. Again, this test will be hard for Lilah, so pray that the Lord will comfort her throughout it.
A more exact term for her heart defect that is most concerning is "dilated cardiomyopathy with left ventricular noncompaction." Again, this in in addition to the ASD and VSD. Home health is coming to their house tomorrow to start to get things in place for Lilah to come home...monitors, medicines, etc. They are looking toward letting them go home Friday afternoon, this could certainly change...but, is somewhat of the goal for now. They will be glad to be home, but a bit apprehensive as well. They feel very "safe" at the hospital, and just want to be able to care for her well at home.
Paul and Gina continue to remain steadfast in the Lord, they are "believing" and praying that the Lord will "help their unbelief" Mark 9:24. They say they are doing "leaps and bounds better than any human could do on his own, and that truly they have been given grace they did not have before." They are continually giving Lilah back to the Lord, knowing full well that she is His...as are they. They are encouraged that at only 7 weeks, God has seen fit to use Lilah in such a mighty way. The solidity of their faith through this is amazing. They said they have always known that Garrett is such a sweet and caring little boy, and though this is certainly not what they had in mind for him as a baby sister, they know that he will love her fully, he is the perfect big brother for Lilah, and this is exactly what the Lord has for Garrett. Gina said, "I am not saying that this is what we want...I would love to give it back, but we feel prepared as a family." Oh sweet Gina.
A group of girls met last night to pray for them. This was greatly appreciated and felt by them. They are still feeling very tangibly loved and interceded for. They again say thank you for all the comments, cards, calls, etc...they are getting them all and it is very uplifting. Will continue to post as things change.