Also, the Doctors feel like that there may be a "bigger picture" to all of this. They are consulting with Neurology and Endocrinology to run more tests and see what else may be going on. As far as treatment, right now they are working to stabilize her heart with medication and continue to run tests for more information.
When I talked to Gina, she said, "I just wanted you to know that I am ok," oddly enough...I believe her. She had a strength in her voice that a determined mother has. She said that of course, they are scared and she is working to not feel hopeless already. I think this has all just come as such a shock. She said that it is hard to not "roll the tape forward" and wonder what the future will be for her, Lilah, Paul and Garrett. She said also, that she is so thankful for Lilah and who she is, and that she knows that God is good. Finally, she said she knows that Lilah is God's child first, but of course this is not what she had in mind for her.
They are able to stay with Lilah in the ICU and are thankful for that. Gina's mom got into town this afternoon and of course Paul's family is there. They are all taking care of Garrett. If you would like to visit, you can call Paul first and see if it's a good time. (If you do not have his number, leave your e-mail address in a comment and I will send it to you.) You will not be able to see Lilah since she is in the ICU, but you can stop by the waiting room and visit with Paul, Gina and the family. They will be honest if they are busy and it is not a good time to visit, but the few visitors that they have had have been encouraging...it's always good to see a friendly face. Gina told me several times that she felt sorry for people, because she knew no one knew what to say and she didn't either. It's not about having the perfect words to say to them, I think just the physical support of seeing people they love will really lift their spirits. I think it will also be very encouraging if you leave them comments on here.
They are going to send updates so I can post and keep everyone updated until they can take it over. I will let you all know of things as soon as I know. Please pray for Lilah and her sweet family.