Wednesday, April 22, 2009

Listen.  Can you hear that? It's me....dancing on my kitchen table, shouting from the roof, and squealing with delight!!! woo hoo!!!! Today, April 21st, we were free!!! NO OXYGEN ALL DAY!!!  All the exclamations are annoying and I'm celebrating prematurely, I know.  I just can't help myself:).  It is amazing!!!!
I've been trying to talk myself into the idea that the oxygen tank was not that big of a pain in the donkey deal.  You know, it's just an accessory, or something like that. But, after experiencing daylight to dusk 'generator free'....I realize I was full of it.  No background noise that sounds like an iron lung.  No tangled cords.  No tripping on tubes.  No wraslin (this is the technical term) Ya to get the prongs back in her nose. She hung out on my bed while I showered and played with toys.  We went outside!  For the first time in 5 months, I was able to pick my baby up without thinking where is the tube, can I reach the kitchen, should we move the generator to another room?. I was able to care for both of my children's needs (as much as this is possible) because we were mobile. We were together all day because I could drag Lilah around with us....it was amazing!
The ironic divinely mysterious thing is--I had just given it up. Given up the my life will be better when she gets off that oxygen thoughts.  Given up postponing life for the day when.  I had quit dreaming of all that we could do if Lilah were oxygen free.  I'm pretty sure it was more of a defeatist attitude than any sort of maturity, but a good lesson for me none the less.  The Lord continues to teach us to turn everything over to Him and remind us that His ways are perfect.
In other (huge) news, we went somewhere as a family!!! All of us....to church on Sunday! It was really encouraging and not nearly as difficult (i.e. nerve racking) as I thought it would be.  I am so glad to have RSV/flu season behind us:).
Clearly, I am on cloud 9 around here.  Trying to give myself a pep talk about not riding the highs too high....it just gives you that much farther to fall the next time bad news comes around.  But, oh the joy!

10 comments:

notes of em said...

WAAAaAAAAaAAAAaAAA HOOOOOOOOOO!
what a fantastic day, a highly anticipated and joyful day! Praise the Lord for His perfect timing. I can totally see Miss. L laying on your bed playing. How sweet that image is.
love you sweet friend, and I love your earnestness in your celebration,and I celebrate with you!

The Leonards said...

we are celebrating here for you too! a blessing to able to rejoice with you as you rejoice!

Amy said...

I'm so thrilled to get this news!! Oh the possibilities, right!?!? Even mobility is such a gift from God that we should not take for granted... thanks for reminding us!! :D

Jessica said...

REJOICE!!!!!!!!!!!!!!!! Awesome news, Gina! :)

Cade and Cora said...

Yay! We are so thrilled. That is what we have specifically been praying for for Baby Lilah. Every night Cora says, "God please help Lilah get strong so she can take out her tubes." And He answered! God is good! Enjoy your baby!

Becky K. said...

I thought I heard the sounds of a free mother this morning!!! Keep rejoicing. How sweet it is.

Johnson Party of seven! said...

Yeah!!!! I am sooooo happy for you! I know what you are talking about!!! So very excited for you! Just in time for summer. Those darn concentrators will heat your house up to unbearable temps! You sound better and that makes me smile!
So.... now that Miss Lilah is off her O2, we need to take these little monkeys to a park sometime. I would love to meet you for real and love on Sweet Miracle Baby Lilah!

Jill Johnson

daisyeyes said...

yippee!! I saw Garrett's name on the sign in sheet this week and just smiled and hoped that it was all of you at church and not just the boys.

So happy for such great news and constant prayers that the dancing on the table continues

Kristi Kain said...

Saw your mom and dad tonight! Your mom told us about the oxygen...yeah! Heard they are watching the kiddies this weekend! Have fun! Love ya!

Jill Temple said...

Praise God!!!!