It's amateur blogger Paul here.
Well, we are extremely thankful for several reasons. After 11 days Lilah finally made it home. She also made it home in time for Gina's birthday tomorrow! We finally took some pictures of our sweet girl. They were taken yesterday at Children's Hospital and they were the first real smiles that we have seen from her in quite a while.
I can't tell you how much how Lilah's smile can completely change my day, but hers always does mine. We feel so proud of her. She has the sweetest and most gentle spirit that I have ever known. She is also uniquely content just to be with us. This little girl has changed my life in so many ways and I could never even begin to articulate them. After 36 years of life, Lilah has taught me how to live.
I also want to say a few things about my beautiful wife Gina on her 31st Birthday. I think that maybe this is a 21st century way of professing my love for her so here goes. This is what I know. I loved Gina before Lilah was diagnosed with her condition(s) but I have come to love her more deeply than I ever knew were possible. She is not only the love of my life, but she has become my best friend.
I have always felt that when something happens like what happened to Lilah, that the mom bears the heaviest burden. Its not that the pain is necessarily any less for a dad, but I feel that for a mom, it's different. Gina has carried and still carries the heaviest of burdens with the ever present list of uncertainties that Lilah faces every day. Simply put, Lilah is going to have to beat the odds.
Nevertheless, Gina continues to love. She continues to care for Lilah and Garrett with her whole heart and she continues to be an amazing wife to me. She also chooses the most difficult task of feeling the full weight of the good and the bad. It's much easier to run from things like this, or to medicate them in a million different ways, but she does the hard thing and the right thing. She feels the pain and she waits for the Lord to pick her up. I have learned so much from her in this way.
The hope in all of this is that God has proved faithful to her and to us in this storm. God's grace is real and He is an ever present help in trouble as it says in Psalms. We have literally felt God's presence in some of the darkest days and God has ministered to us through the gift of your prayers.
Happy Birthday Gina. I love you!