Sweet baby is 6 months old! The actual date passed when we were in the hospital, but I wasn't feeling like chronicling her milestones at that point. Like so much of this journey, we are living 'flipsides'....weary but encouraged, saddened but hopeful. The Lord has already done more than we knew to ask or thought to imagine for Lilah, for our marriage and our family, and for so many who walk this with us.
The day of her diagnosis, I remember crying that "I will never know her". What I meant was; I thought I would never know who she was intended to be. The beauty of this looking back is: this is exactly who she was intended to be on Earth and... I do know her! She has a personality, and it's pure, and sweet, and wonderfully made.
At 6 months, she loves people, her 'lovey', her paci, and (most recently) tasting graham crackers. She is starting to really appreciate lights, toys, and music. She has a healthy fear of her brother:) She loves to hold hands! She lights up with any attention, but does not demand it. She HATES having her oxygen put in her nose and she really dislikes having shirts pulled over her head. Generally, she is most incredibly sweet spirited, gentle, and the embodiment of innocence.
Milestones will always be tough for me. I cannot help but to compare her to the 'typical' in my head. And the older she gets, the wider the gap. I want so badly for her to be able to engage in her environment...to reach, roll, sit, and crawl. I want to be able to carry her on my hip as I did her brother. I want to worry about how new teeth will hurt her and if I am giving her 'new foods' in order. I have the most incredible ache in my heart to hear her voice. But, we also rejoice. Her life has been spared. We have been given this gift. Lilah continues to delight and surprise. Her body has proven to be stronger than once thought and she is engaged and attentive far beyond expectations.
Cheers to 6 months! Hard, yes. But, so SO worth it.