I write again (after 4 years) as an act of will. My God reminds me day and again that my girl is His girl and our story is His story, and, as all of His works...it is beautiful. I will start with her Eulogy, which was nearly as perfect as Lilah....
Good morning. My name is Drew Miller, my wife and I have had the distinct pleasure of being friends of Paul and Gina's for over a decade now, and I am so honored to be able to share with you this morning. But here's the thing, I don't have a clue how to do this. How do you stand up and attempt, over the course of a few brief moments, to communicate the life that was Lilah Burch? To say that words are inadequate doesn't even begin to describe the limits of language. As I thought about this moment, about what I could say to honor and celebrate Lilah, I was continually struck by this truth of her life: she never. spoke. a single. word.
Yet here we sit, our lives having been forever changed by her. Do we wish we could have heard her speak? Absolutely! But did she need speech to communicate? Absolutely not. You only had to walk in the room an her precious face would beam with joy. She would kick those dainty feet up and down, she would clap her hands together, and if I was lucky she would give me one of these ("daddy sign") but she usually saved those for her daddy. In that moment, walking into a room with her, it was as if she could communicate a world full of truth and love with a simple look, a gesture, a smile.
There were, of course, times when she was focused. Intent on keeping tabs on the latest happenings of her backyard friends, maybe you have heard of them? Pablo, Tyrone, Unique, Tasha, and Austin--The Backyardigans. In fact, I can guarantee that Lilah was personally responsible for the success of that show! You did not want to get between Lilah an her iPad!! She could be in the hospital, tubes and needles, nurses and doctors, but when you got this ("iPad sign") you had better find her iPad! Lilah also had a ferocious appetite that was centered most around gourmet finger foods, especially Cheetos. If there were no cheetos to be had, her paci would suffice, but if that was nowhere to be found, she was going to find something to chew on! If she could get her mouth near it, it was fair game!
These are the things that we will never forget about her. But the thing that will truly live on, Lilah's legacy, if you will, is the unconditional love she had for her mother, her father. For Garrett and for Ada. For her friends, for lucky fools like me.
Paul and I were talking the other night and he shared something with me that I want to share with you. When Lilah was born, before there was any indication of the struggle that was to come for her, Paul claimed the verse I read, Jeremiah 29:11, to be Lilah's verse. Weeks later, when they received Lilah's diagnosis, Paul did the reasonable thing, the thing that I would have done and you would have done. He questioned God. He read this verse from Jeremiah and he sat dumbfounded. How could God promise this, "not to harm you, to give you hope and a future" yet here they sat, with a child that would never walk, would never talk.
Then a marvelous thing happened. Paul and Gina began to experience God's love in a way they could never have anticipated. God used Lilah to display His unconditional love to them. He didn't do it through a strong and sturdy body, he didn't do it through an A+ student on the honor roll who lead her soccer team in scoring. He didn't do it through eloquence and language, he chose to show his love to the Burches through the frailty and brokenness of a beautiful little girl that touched more people in 7 1/2 years than most of us will in 70. Why? I don't have any idea. But I do know this is the way God tends to work, through weakness, through frailty, through the things that the world around us would have us dismiss and ignore.
And that part about giving her a hope and future? Lilah is experiencing hope in all it's fullness at this moment. Not hope like, I hope the Vols win today or I hope I get a new puppy for Christmas. Hope as in a promise that has come to fruition. Lilah is experiencing, at this moment, all of the hope, goodness, and prosperity of Heaven as she rests in the arms of her Heavenly Father.
Lilah Marie Burch was born July 16th, 2008. She was 7 1/2 years old when she went to be with her Creator this past Monday, February 1st, 2016. Lilah left behind her parents, Paul and Gina, her big brother Garrett and her little sister, Ada. She also left behind her grandmother, Mary Katherine Burch, her Grandparents Diane and Harry Steinsberger, and was proceeded in death by her late Grandfather, the Reverend Robert C. Burch. Lilah also has a myriad of Aunts, Uncles, and cousins, as well as a great-grandmother, all part of her story.
But the story that will forever live on the in the heart of Paul and Gina, her siblings, her extended family, and friends like me is this; She was weak, but He is strong. And through His strength and power, shown in her beautiful, marvelous, broken body, we experienced love unknown. That is Lilah's legacy. May we all strive to leave a legacy of love the way that Lilah Marie Burch has done.